Another thing is having to wait on this occasion 4 hours for an ambulance, unable to stand up or go the loo - then another 4 hours on a trolley to be seen properly - and the drink of water arrived 5 hours after this!! We have made note, but don't want to make life difficult for him by being a 'complaining' family.
I live at a distance and I know that relatives such as me can get a reputation of being the loudest complainers as a way of dealing with their own guilt at not 'being there' very much. Maybe that's true...I'm sure had one of us been there with him it would have helped his treatment :-(
Anyhow, thanks for listening, I know it's not strictly related to CD but feel better for sharing x