Perhaps every patient needs to write to:
+GP Practice Manager
+Dietitian (if one assigned)
The letters/e-mails can be similar, but they should clearly ask what will happen to those with CD when they can no longer find the basics such as GF Bread Mix, GF Flour Mixes, selection of GF pastas etc. if the supermarkets no longer stock the items? Anyone writing should also point out that the items are not routinely stocked by Pharmacies - unlike other items which CCGs wish to remove from their list of prescribable items.
Products containing Codex are not normally stocked by supermarkets in any case at the present time. This could be an indicator of what is to come?
In the event that patients cannot readily obtain basics, patients need to ask an additional question - who will be liable for any potential ill health issues which may ensue to that patient as a result of withdrawal? (and, yes, I do know that potatoes, rice and corn are naturally gf, but not everyone wants a potatoe sandwich at lunchtime!!)
What also needs to be highlighted is the difference in price of a regular basket of goods conventional vs gluten free options.
I've mentioned this before and at the present time i have been contacted by two people who have stated that they are willing to survey their local supermarket.