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Re: Have I got undiagnosed Coeliac disease?
Posted by Barb on 1/9/2017, 15:48:14, in reply to "Have I got undiagnosed Coeliac disease?"
I'm not sure about the endoscopy. It used to be the only way to diagnose CD but I understand there is another test available now (might be saliva?) which is much less invasive - someone on here will be able to advise you what to ask for.
The little itchy lumps sound very much like DH which is another manifestation of CD. I didn't have the other symptoms you describe personally, mine were more to do with diarrhea, but everyone's different. Tiredness is difficult to quantify especially after having a baby, but bladder sensitivity would seem to indicate a need of further investigation - has your urine been tested?
Your GP doesn't seem sympathetic, can you see another one in your practice?
If you can't dodge the endoscopy - make sure you insist on sedation and tell them about your fears, the nurses at the hospital are very understanding.