Its only now I am starting to feel better. I decided that there were a lot of products that the UK coeliac charity said were suitable that perhaps I had a problem with so I have not started to eat them again.
The Australian coeliac charity dont recommended eating oats, they have a lower ppm than the uk, so I look at their site for guidance if I am not sure.
While its up to the individual to decide what they eat I often think when people say that they dont react to things that they still could be, just maybe not the reaction they have normally. I think that there is a lot we still have to learn about it.
I have copied the paragraph from the aussie site below
re gluten free oats ok to eat if I have coeliac disease?
FSANZ defines wheat, rye, barley and oats as gluten containing grains, as all four grains have been shown to trigger a reaction in those with coeliac disease.
Many gluten free or pure oat products are now being imported to Australia. It is important to note that this means that the product is only free of contamination from wheat, rye or barley crops during the harvesting, processing or packaging of the product. The product has not had the gluten extracted or been genetically modified to be gluten free.
It is recommended by the Medical Advisory Committee (MAC) for Coeliac Australia that despite the extensive medical research done in relation to oats and coeliac disease, oats should be excluded from a gluten free diet until the research is more conclusive and definitive.