The easiest way to avoid regrets is to ask yourself this question, "If not now, when?" It's a powerful way to put life and our decisions about how we spend our time into perspective"

Update Posted by Paula on 7/7/2025, 7:45 pm I slept walked last night. I got up and went to the bathroom. Then I noticed I felt hungry and I was aching to see Gianni. I must have walked my whole house in the dark without my walker, looking for him I would have thought it a dream if the banana peel wasn't on my nightstand. Strange RN came out and changed the wound vac. Said there's no way to know how long I will need it but it looks clean. She will put an order in for an aide and will try to get 2 days/week Mostly hygiene. No sheets or anything like that. Medicare approves services on a medical need level of care I had a temp last evening 99.7. 100 is the magic number for calling for help. Tylenol took it down . About 3AM, I woke up drenched like when a fever breaks. I told her she needs to tell the surgeon because with all these drugs I shouldn't get a fever. Got up at 8 and pooped my pants on the way to the bathroom. That is so out of his wheelhouse but I figured it out. Blake puked on my comforter. Bill got that in the washer. This is so hard for Bill and I think it's forcing him to see his limitations and that's scary for both of us. I won't put him in this position again. Still lots of back pain and exhaustion. If Carin tests negative for Covid, she may drive up later this week. Would love to handle the reinstall off to someone else for a couple days Sooner or later things will improve. I know I'm being awful..but I'm exhausted. The back pain, infection and all the meds is rough. Miss you guys. I just can't focus much. Miss reading

I am so grateful that you are Posted by Delta on 7/8/2025, 11:32 am, in reply to "Update " keeping us updated on your progress. It is progress, no matter how it seems when you are living in. I know that you want to be back to your normal again as quickly as possible. Unfortunately, these things take time. I am very surprised and heartened that you can type out not only sentences, but paragraphs. Those antibiotics you are on are powerful and make things harder but they don't want you doing a lot right now. I miss you, too.

Honestly... Posted by Joan on 7/8/2025, 6:58 am, in reply to "Update " I don't know how you were able to post an update, but thank you! I'm hopeful that things will improve sooner rather than later! We miss you, too. Let me clarify. I miss you!!! Continued prayers, of course!

We miss you too… Posted by Cindy on 7/8/2025, 1:50 am, in reply to "Update " And you are right-sooner or later things will improve. I’m glad you are going to check with the surgeon about getting a fever. I wouldn’t think with all the meds you are on you would be getting a fever either. I hope Carin feels good enough to come help you out for a few days. She seems quite sweet.

I'm speechless Posted by Krista on 7/7/2025, 9:16 pm, in reply to "Update " Thank you for updating us Paula. I feel so worried / concerned about you. I don't know what's "normal" for your post-op recovery but this just doesn't sound "right". I am praying as that's all I can do that things improve for you. Should you still be in back pain?

It's the infection that's causing most of the problem Posted by Paula on 7/8/2025, 9:19 am, in reply to "I'm speechless" And, I am on killer antibiotics that can only be given through an IV. That's the 'picc line.' They have to stop the infection. After the 3rd surgery, they decided not to close the wound all the way so they could attach the wound vac which is sucking good out of the wound 24/7. I'm still not supposed to bend, lift or twisting as the actual spine tries to heal. Everything tastes wrong. I really wanted an apple and it tasted like fish. Most food sounds terrible. Cereal, yogurt, English Muffin is ok. Premier Protein tastes extra horrible. Who'd have thought I would ever need to be forced to eat? Cleaning ladies coming today

The antibiotics will mess with everything Posted by Delta on 7/8/2025, 11:52 am, in reply to "It's the infection that's causing most of the problem " When I went through the heavy antibiotics, all I could find that I could eat was half a scrambled egg sandwich, mashed potatoes without butter, and macaroni with nothing on it. Find something you can tolerate and eat those things. Keep trying other things because the tastes will still be changing. On a good note, your weight will be way lower when this is over.

That has to be Posted by Cindyh on 7/8/2025, 11:23 am, in reply to "It's the infection that's causing most of the problem " Really hard Paula. I’m so sorry and pray you get better very soon. Hugs to you

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