When posting messages that contain useful information please only use smilies at the start and end of the message to make it easier to copy it to the supplementary board. It is even more helpful if you post a copy of useful information on the supp board yourself.

Facebook Group Posted by Steve in Yorkshire on 17/9/2023, 12:17:21 Just thought I'd mention this new Facebook Group here Link: Coeiliac Disease UK

Re: Facebook Group Posted by Sheena on 17/9/2023, 14:53:23, in reply to "Facebook Group" Don't have a facebook account but managed to look at a few posts before they asked me to sign in.

Re: Facebook Group Posted by Steve in Yorkshire on 17/9/2023, 18:04:44, in reply to "Re: Facebook Group" They already have over 1000 members and it's looking like it could become a useful UK resource.

Re: Facebook Group Posted by Ross (Lanarkshire) on 17/9/2023, 18:28:20, in reply to "Re: Facebook Group" Agreed but not for me as I won’t subscribe to Facebook, X nor Instagram et al. I worry it will be the death of this Board.

Re: Facebook Group Posted by Sheena on 18/9/2023, 9:04:48, in reply to "Re: Facebook Group" Hope not Ross as I enjoy checking the Board.

Re: Facebook Group Posted by Davidmc on 20/9/2023, 16:41:30, in reply to "Re: Facebook Group" I like to use both, the online message board because of its simplicity and the online groups which offer great resources and recommendations for safe places to eat and if required to plan trips or holidays around. People in them like to help others. There are moderators in place to deal with anything which is not appropriate . I recently came across a good cafe in Edinburgh for gluten free. It was picked up by a lot of people which helps both the GF provider and the gluten free customers. That’s win win for us.

Re: Facebook Group Posted by Christine (Bristol) on 18/9/2023, 13:43:27, in reply to "Re: Facebook Group" Not for me either - don't use Facebook, TikTok, Instagram, Twitter, Whats App. It's probably an age thing but I just don't like them or need them haha.

Re: Facebook Group Posted by David mc on 20/9/2023, 6:49:20, in reply to "Re: Facebook Group" I have a Facebook account which has my photo but no other information. Most Facebook content online I choose not to connect to. Like everything in life things are not always black or white. I used Facebook marketplace to sell off unwanted stuff when moving house. It was easy and profitable. There are quite a number of Facebook groups which are coeliac based. They are also private to the members. They are mostly well moderated to ensure responsible compliance. What they really do is enable other coeliacs to gather helpful information that can make their lives as coeliacs easier, locations to eat safely, food tips, holiday places, restaurants etc. Facebook private groups abound for all manner of things. There are lots of support groups for various medical conditions. Examples would include the shingles group and the bowel and bladder groups which help provide support for others similarly affected by what can be distressing ailments. . I still like the message board here as it was a helpful haven for me when first diagnosed and I have enjoyed meeting people here, albeit not in person. There is good and bad everywhere in life and that includes Facebook.

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